About Us
Objectives of the Spina Bifida Association of Western Australia (Inc.)
- To promote and develop the care and welfare of persons with spina bifida.
- To create between its members and the public a clearer understanding of spina bifida and the capabilities of people with the condition.
- To arrange meetings and group activities to assist parents and others associated with people with spina bifida to cope with and understand the problems arising from the condition.
- To make and maintain contact with similar groups and associations interstate and overseas.
- To enable its members to be kept informed as to the latest treatment and research in connection with spina bifida and to encourage continued research into the problems.
- To promote a spirit of co-operation with the public, hospitals and other organisations vitally concerned with spina bifida, or any organisation with which this Association deems it necessary to affiliate.
Services We Provide
Provision of Disposable Incontinence Products.
The Incontinent Pad Scheme (IPS) began in April 1992. This scheme is for all children between the ages of 3 and 16 years who are incontinent due to a permanent disability. Full details of the scheme, which is funded by the Lotteries Commission, are available in a separate leaflet on request.
Family Support.
Support (practical and emotional), information, social events and advocacy are provided and/or arranged for members.
Family Camps.
Are held annually at Point Peron for 10 days in summer and over the long weekend in June. The summer camp is part-funded by the Lotteries Commission and families pay a small daily fee to attend.
Community Education.
Includes an annual in-service for teachers at the beginning of each new school year. Spina Bifida Awareness Week is also conducted annually as part of a nationwide event.
Library.
Books, journals, video-cassettes and audio-cassetes are available on loan, free of charge, to members and other persons interested in obtaining further information about spina bifida.
Tutoring.
When funds are available assistance is provided to parents by way of subsidies for tutors' fees.
Driving Lessons.
As funds are available, assistance in the form of a subsidy for driving lessons is provided to members with spina bifida.
Young adults programme.
A special programme of activities is arranged for young adults with spina bifida, including camps, barbecues, etc. The programme is organised by a Young Adults Committee, which comprises members of the Association's Management Committee and the young adults themselves.
Membership.
Is open to any person interested in the welfare, education and happiness of those with spina bifida.
our sponsors:
